Admission to the hospital can happen in various ways. You family member may be treated in the Emergency Room (ER) and need additional treatment requiring a hospital stay. Other times you may know that your family member will be staying in the hospital for at least one night. This planned admission could be for elective (non-emergency) surgery, tests, or special procedures.
Whether it starts as an emergency or as a planned admission, a hospital stay is often the first stage in a series of transitions, or moves to different health care settings. You and your family member will feel more prepared and perhaps less anxious when you know what to expect.
If you are helping your family member plan for a hospital admission, start by reading the first section of this guide.
If your family member is already in the hospital, you can skip this part and go directly to the section “When Your Family Member is in the Hospital”.
Your family member will likely get a packet of pre-admission papers. Ask for this packet if the hospital does not offer it. The packet will have basic information about:
Make sure to read all the papers in this packet. You might also want to make a list of questions to ask. Most hospitals have websites where you can find additional information.
You and your family member should know ahead of time what tests or procedures he or she is likely to have and why they are needed. Here are some questions you might want to ask:
You and your family member can create a kit to take to the hospital. Here are some items to include in your hospital kit:
The suggested items below can provide your family member some comfort:
Some items are best left at home. These include:
There are a lot of papers to sign when your family member goes to the hospital. These include:
You will need basic facts such as to how you can get to the hospital by car or mass transit, what times you can visit. Call the hospital’s main phone number or go online to the hospital website to get specific information.
Most people want to know about visiting hours – times they can and cannot be with patients. There likely will be signs about this. Ask a hospital staff member if you do not see the sign or want to know more.
Some families hire a private-duty nurse or aide to stay with their family member. This can be helpful when patients are having complex medical procedures or need extra attention. Here are other facts to know:
Most patients can choose their meals from the hospital menu. Talk with the doctor or nurse if your family member asks for certain food from home. This may not be allowed because of your family member’s medical condition.
There likely will be many doctors as well as other health professionals caring for your family member. They are sometimes referred to as “health care team members.”
Below are some facts about many types of health care team members.
If your family member is a patient at a “teaching” hospital then you are likely to meet many doctors and medical students. Feel free to ask each doctor his or her name and level of training. You should also ask who is in charge of your family member’s care. Doctors can include:
It is likely that there will be many other health care professionals on the health care team. Nearly every hospital will have the following professionals on staff:
Depending on your family member’s condition and care, other staff members may be involved:
Here are some ways you can help:
Just because your family member is in a hospital bed, on a hospital unit, eating hospital food, and undergoing hospital tests does not automatically mean that he or she has been admitted to a hospital. Sometimes doctors want to watch a patient for a few hours or a day to see whether there is really a need to be admitted to the hospital. This is called “observation.” More patients are now in hospitals being observed rather than admitted. This is largely because of Medicare’s efforts to reduce expensive hospital admissions and possible readmissions.
Does it matter if your family member is admitted to the hospital or is just being observed? Yes, because Medicare pays for hospital admissions and observation differently. As a result, your family member’s part of the bill is likely to be higher if he or she is only being observed than if he or she were actually admitted.
Admission vs. Observation | |
Hospital admissions are covered under Medicare Part A. Under Medicare Part A, after a one-time deductible fee, all hospital costs are covered when a person is admitted as an inpatient. | Observation status and emergency room care (without admission) are considered outpatient care, and are covered only by Medicare Part B. Medicare Part B treats each lab test, X-ray, and other service as individual items, each with a copay. Prescription drugs are not covered and may be a separate charge. |
There’s more. To be eligible for Medicare-covered skilled nursing facility services, your family member must have been a hospital inpatient for at least three days. The observation days do not count.
The result? After 72 hours of observation, your family member will have a higher hospital bill and will not be eligible for Medicare-paid rehabilitation services in a skilled nursing facility. Note that these rules apply to regular (that is, fee-for-service) Medicare; if your family member belongs to a Medicare Advantage (HMO) plan, check with the plan for its requirements.
What can you do?
Medicare has issued a brochure that explains observation status.
http://www.medicare.gov/publications/pubs/pdf/11435.pdf
Also see the Center for Medicare Advocacy website.
www.medicareadvocacy.org
For a planned hospital admission, contact your family member’s insurance company before the hospital stay. You need to do this because most insurance plans require “prior approval” – when the insurance company agrees to pay for the hospitalization before your family member is admitted.
For an emergency hospital admission, call your family member’s insurance company as soon as you can. If the hospital admission has been planned with a doctor’s office, someone there will help make sure approval has been granted. Let this person know if you have any insurance problems.
Learn about your family member’s insurance. This includes what it will and will not cover (pay for). This helps you prepare for any additional costs. Speak with the hospital account representative if your family member does not have insurance or if insurance does not cover all the costs. Also let the account representative know if your family member cannot pay the costs. The hospital may be able to get you financial assistance or arrange a payment plan.
There may be times when your family member’s tests or procedures are delayed (late). This happens because hospitals can be very busy. Be patient and ask the nurse to tell you when this test or procedure might take place. Remember that the nurse may not be able to control the schedule.
You may have concerns about the quality of your family member’s care. Perhaps you think that there is too much care (such as too many tests, too many consultants, or too many medicines). Or maybe you are concerned about too little care (such as few doctor visits, unclear plans, or information that changes from person to person).
Here are some common quality concerns along with what you can do:
Many patients become confused when in the hospital. This happens even more when patients are older, have had a stroke or brain injury, or are in the ICU. Even though it is common for patients to be confused, do not ignore it.
Family members are often less confused when caregivers stay with them. Caregivers can help explain what is going on and offer comfort. Let staff know if your family member seems more confused. They likely can find ways to help.
A hospital stay may be especially difficult for people who suffer from Alzheimer’s or other forms of dementia. These patients are likely to feel disoriented, confused and anxious in an often chaotic environment such as the hospital. They may be upset by an unfamiliar routine and care by strangers. Be sure to let hospital staff know any helpful tips about feeding or bathing your family member. Also let them know if your family member has problems such as wandering, shouting or other aggressive behaviors and how best to cope with such behaviors. It might help to remind staff that looking directly at your family member, and talking in a calm and reassuring voice will help reduce anxiety. For your part, make sure you orient your family member to the hospital surroundings as often as you can.
Health care professionals often use special language (“jargon”) when talking to each other. This may save time but can be very confusing for patients and family caregivers. This includes terms as “PEG” (a feeding tube inserted in the stomach) and words like “febrile” (having a fever).
Ask what these words and terms mean. Don’t be embarrassed. Many people have trouble with jargon. Here is a way to learn about common medical terms, click here: http://www.nlm.nih.gov/medlineplus/mplusdictionary.html
It can be very hard to talk with the health care team when English is not the first language for you or your family member. You have a right to ask for an interpreter when important information is being discussed. The hospital may offer help by bringing in a hospital employee who speaks both the patient’s language and English, or using an outside telephone service. You can request a sign-language interpreter if your family member is deaf or hard of hearing.
There may be times when you do not agree with your family member’s treatment plan, perhaps around end-of-life care or a risky procedure. You can ask to speak to a member of the hospital “ethics committee” when there are major disagreements between you and the healthcare team or family members. An ethics committee member works at the hospital but is not involved in your family member’s direct care. He or she can offer an objective (fair) point of view. You can ask to speak with the whole ethics committee if you still need help with problems like these.
As a family caregiver, you are a very important member of the health care team. You can help your family member prepare for a planned hospital stay. You can also help make the time in the hospital less confusing and scary.
While you are there to support your family member, make sure to also take care of yourself. Think about your own needs. Eat when you have a chance. Take a book or magazine to read while waiting. Ask others to take over so you can have a break. And of course, rest when you can.
©2014 United Hospital Fund